Friday, January 02, 2009
One of our beautiful daughters has a seizure disorder which she developed in her freshman year in college. They called it "honeymoon seizure" because young girls who are prone to this often develop them between the ages of 18-21 and often after a stressful time - like, I suppose the wedding night.
Quaint image, right?
She has been stable for years, but once a year she goes in for an EEG. As part of the procedure, they stimulate a seizure so they can more completely assess her condition.
This is done once a year as a matter of course. Just a routine test. No big deal, really. Except, of course, that it is.
I'm leaving in a few moments to be with her and I'll stay with her until one of her friends comes in to spend the night. Just a precaution, is all.
Except that we'll all be anxious until it's all over.
So, if I may be so bold as to ask, I would deeply appreciate your sending some 'arrow prayers' this way.
You know. Just until it's all over. Which will be about 3:30 this afternoon.
Thank you. I feel better already, knowing that she will be lifted in prayer by such a mighty cloud of witnesses in the Communion of Saints.
UPDATE: All is well. She had two "really big" seizures and was pretty disoriented afterward. She is now emotionally labile but she's doing okay. She'll even out in the next few hours.
The long term hope is that these EEGs will provide researchers the information needed to find a surgical intervention for this disorder so that she might be able to get off all medication.
Please don't get me wrong: We are so very, very grateful that there is medication available and that she is under such good control.
It's just that the medication has terrible, long-term side effects and has ominous implications for fertility and pregnancy. So, while we are thankful to be able to medically manage this disease, a cure would be nice. Real nice.
I simply can not tell you how grateful I am for all your prayers. Knowing you were lifting her (and us all) up in prayer really helped me to make it through the anxiety.
Pray now for John Travolta and Kelly Preston's 16 year old son Jett who apparently drowned or hit his head in the bath tub after having a seizure. It's every parent's worst nightmare.
Pray for all who have to live with this disease, for the doctors and medical professionals who tend to them, and for the researchers who are working diligently to find a cure.